Board of Directors
Dustin Pepper (US)
Dustin started as Executive Director and moved to board Chairman in February of 2019.
Lisa Sherman-Weeks (AU)
Vice-Chair (International Operations)
Lisa has been an administrator of our support group and was promoted to Vice-Chair (International Operations) May 2018.
Markesia Tatum (US)
Markesia was promoted to board secretary June 2018.
Tracey Martel (US)
Tracey was re-confirmed as treasurer in June 2018.
Christian Mwila (US)
Christian started as Executive Director in April 2020.
Medical Advisory Board
Dr. Benjamin Galen (US)
Dr. Galen is an assistant professor of medicine at Albert Einstein College of Medicine and Montefiore Medical Center in The Bronx, New York.
Dr. Alon Hait (DK)
M.D, Ph.D fellow – Novel Primary Immunodeficiencies Associated with Susceptibility to Mollaret’s meningitis (Recurrent benign lymphocytic meningitis), Aarhus University Hospital, Denmark.